Sunday, April 27, 2014
Epilepsy: We are Talking about it and Walking about it!
Listen to The Sound, 100.3, Southern California’s Classic Rock Radio as Janna Moore, Executive Director of Epilepsy Support Network and Dr. Lily Tran, Pediatric Epileptologist at CHOC, Talk about living your best life while facing epilepsy. This show aired Sunday, April 27th, at 7:30 am.
Thursday, November, 7, 2013 and November 5 & 6, 2014
Epilepsy Awareness Day at Disneyland Resort. This was a very special, one day event, that honored people with epilepsy at the "happiest place on earth." It was the collaboration of Dr. Diane Stein, Epilepsy Foundation and Disnelyland Resorst. While we celebrated a community of strength and unity, this event also helped raise money for Epilepsy Support Network of Orange County, as a 501(c)3 event partner dedicated to helping people who live with epilepsy.
October 7, 2013
HBPOF donates $42,000 to help Children with Epilepsy. We are overwhelmed with appreciation and gratitude for the Huntington Beach Police Officer's Foundation and the Constable Classic Golf Committee. A proud moment shared by all who helped to benefit Epilepsy Support Network! To view the video, scroll to minute 15:20 for our episode.
July , 2012
Implantable Devices Could Detect and Halt Epileptic Seizures. Electrical stimulation, brain "cooling" and drug-delivery devices are all being developed as antiseizure tools
June 18, 2012
Seizures: When 'Electrical Brainstorm'Hits
Soo Ihm, 41, was diagnosed with epilepsy when she was 6 or 7. She said she gets frustrated that more people with epilepsy don't speak out.
June 5, 2012
New Epilepsy Tactic: Fight Inflammation
In November 2008, when he was just 6, William Moller had his first epileptic seizure, during a reading class at school. For about 20 seconds, he simply froze in place...
May 9, 2012
Response to First Treatment May Predict Epilepsy's Course, read the HealthDay link.
April 18, 2012
The CHOC Children’s Comprehensive Epilepsy Program recently achieved recognition by the National Association of Epilepsy Centers (NAEC) as a Level 4 epilepsy center. Level 4 epilepsy centers are recognized for having the professional expertise and facilities to provide the highest level of medical and surgical evaluation and treatment for patients with complex epilepsy. CHOC is the only free-standing children’s hospital in California to be named a Level 4 epilepsy center.
March 30, 2012
The IOM's Committee on the Public Health Dimensions of the Epilepsies held a public briefing to discuss its new report on the public health dimensions of the epilepsies.
OC Housing Authority Waiting List is Open!
The Orange County Housing Authority (OCHA) will open its Waiting List to accept pre-applications for housing assistance from February 15, 2012 until February 29, 2012.
January 11, 2012
Special needs calculators from Merrill Lynch and others can help families start planning for complex financial situations.
October 28, 2011
Duke to Lead $25M Epilepsy Research Project
Duke University has won a $25 million grant from the National Institute of Neurological Diseases and Stroke to lead a multi-partner genomics study aimed at finding the genetic basis of epilepsy, the school said today.
October 20, 2011
Anti-Seizure Bill's Passage Brings Relief, Uncertainty
SB 161 will allow teachers and other non-medical personnel to administer an anti-convulsion, rectal medication to students beginning Jan. 1.
October 15, 2011
Each seizure has the potential to end a life or have serious brain damage, said Susan Axelrod who founded Citizens United for Research in Epilepsy in 1998, a charity inspired by her daughter's lifelong battle with the disease.
October 11, 2011
Governor Jerry Brown announced today that he has signed crucial legislation to help protect students from bullying and harassment. The California State PTA sponsored the bill, AB 1156, by Assembly Member Mike Eng.
October 10, 2011
Mom prepares for special needs son’s hospital stay, offers tips for parents. By Jo Ashlin
July 19, 2011
New, less-invasive Epilepsy treatment promising
Procedure could change how epilepsy is treated in many patients, particularly kids. Dr. Jennifer Ashton takes a look at how this promising treatment works.
July 27, 2011
New Device Reduces Seizures, No Surgery Required
The device works by stimulating the trigeminal nerve, which runs just beneath the skin covering the eyebrows. Electrical signals follow that nerve to areas in the brain where seizures often begin, researchers say.
June 23, 2011
The American Brain Coalition urges you to ask your Representatives to join the Congressional Neuroscience Caucus. ABC is an avid supporter of the Caucus and will be hosting a luncheon briefing on Capitol Hill. This is a wonderful opportunity for our member organizations to rally and urge other Members of Congress to join the Caucus.
June 13, 2011
Susan Hall, PhD, head of research and development at Valeant, spoke on the new medication, "We believe this product will play a needed role in the management of partial onset seizures in appropriate patients who are uncontrolled on their current medications."
2nd Annual EWOC Reaches the 60K goal!
For some, meeting the monetary goal for the walk is important, for others it's the smiles on the attendees faces! I am thrilled to report that we have been successful on meeting both objectives. Read more..
June 6, 2011
Next week, Dodger Stadium will play host to a tough hurler of a different kind. Huntington Beach resident Dan Kanne will throw out the first pitch at the Los Angeles Dodgers game June 18. City Lights: Pitch comes from his inspiration
March 4, 2011
The U.S. Food and Drug Administration (FDA) has accepted for review a New Drug Application (NDA) for the investigational compound clobazam as adjunctive therapy in treating seizures associated with Lennox-Gastaut syndrome (LGS) in patients two years and older.
February 14, 2011
Smart-Monitor is enrolling limited number of participants for in-home beta tests of the SmartWatch product. The company is seeking people of all ages and genders prone to tonic-clonic (grand mal) seizures. The SmartMonitor team will be qualifying participants based on information provided on an online application form, followed by a phone interview.
For application forms and more information regarding the Beta test
IBE Golden Jubilee Photo Competition: Epilepsy Without Words
A photography competition, open to all, is the first of many initiatives being planned to celebrate IBE’s Golden Jubilee in 2011. The competition, titled Epilepsy Without Words is open for entries from 15th May 2010 until the closing date on 1st March 2011.
International League Against Epilepsy
January 6, 2011
ARTICLE: Quality of Life in Children with Epilepsy Adversely Affected by Maternal Depression...medicalnewstoday.com
December 24, 2010
Parents prompt epilepsy study, gain 10,000 followers less than a year after son's tragic death,.. fwdailynews.com
Need a epilepsy detector app for your mobile phone? A free mobile application to detect epileptic seizures with automated carrier alert. Get more info.
The Diane Rehm Show
More than half of the nearly 3 million people who have epilepsy in the U.S. are children. What causes childhood epilepsy, treatments currently available and advice for families coping with this complex disorder. Visit the Diane Rehm Show site
September 8, 2010
They call it a watch transfer receiving device and it will detect convulsive (tonic clonic) motion only. It performs two functions by first capturing the date, time, duration of the convulsive movement and creates a graphical plot (eeg). The sensitivity of movement is set according to the user. The data is stored on the device which can later be downloaded to a computer. The second function alerts the caregiver either by phone or text message. The messaging preference and interval at which the phone call is made can be set by the user.
It is still in a controlled testing phase at Stanford - Epilepsy Monitoring Unit (EMU) and is scheduled to enter the consumer testing phase in March 2011. As for the design it will not be as it appears on the website, they are redesigning it to be less bulky. We will post more information as it becomes available.
September 2, 2010
ABC NewsVideo highlights a single mom with epilepsy who undergoes brain surgery to cure her epilepsy.
August 20, 2010
The Orange County Register writes about the Make a Wish tandem tricycle that has a number of features to enable Brenna Pratt, a 12-year-old with severe seizures, to ride safely.
July 26, 2010
New York Times article brings long-overdue and much-needed public attention to one of the worst consequences of epilepsy—Sudden Unexplained Death in Epilepsy.
July 26, 2010
New York Times – Today brought long-overdue and much-needed public attention to one of the worst consequences of epilepsy—Sudden Unexplained Death in Epilepsy.
Webinar Part II: How to Beat Bad Seizures Including a discussion of chronic AED meds and Diastat; Discussing DIASTAT with your doctor; Use of DIASTAT in various settings as school, work, vacation, etc.; Summer travel, summer camp, returning to school, and having Diastat on hand for these situation; Case studies; Review of various state laws relating to which professionals can administer DIASTAT.
June 26, 2010
YouTube – America's Got Talent judges send Connor, 17 year old boy, on to Las Vegas after watching his inspirational audition doing indoor kite flying.
June 17, 2010
Meet the Doctors – Neurologist Dr. Marie Atkinson, from Detroit Medical Center, Harper University Hospital and Wayne State University School of Medicine in Detroit, Michigan, explains how a vagal nerve stimulator (VNS) device is used in an effort to stop epileptic seizures.
Support our cause with your online shopping purchases. A portion of each purchase at over 700 online stores goes directly to supporting our services. Searching the web, use the iiSearch toolbar or bookmark the page and earn $.01 for every qualified search toward Epilepsy Support Network
May 21, 2010 Help Us Bring Epilepsy Out of the Shadows – ...I'm writing today because it's time to shed that same illimitable light on epilepsy. Why? Because it's prevalent. Because it's devastating. Because it's close to my heart.
May 19, 2010
Nursing board opposes student anti-seizure bill. COSTA MESA – The state nursing board voted Wednesday to oppose a Senate bill that would give school workers clear authority to administer an anti-seizure medication to students in an emergency.
May 3, 2010
Our first annual fundraiser, Epilepsy Walk of Orange County, has raised over $40,000! Thank you friends, family and co-workers for joining the Epilepsy Support Network's Epilepsy Walk and walking for people with epilepsy. Click here to view our generous sponsors. View photos Joe Bellanger and APD Photography
March 2, 2010
Support our cause, iGive iSearch, with your online shopping purchases. A portion of each purchase at over 700 online stores goes directly to supporting our services. Searching the web, use the iiSearch toolbar or bookmark the page and earn $.01 for every qualified search toward Epilepsy Support Network.
January 23, 2010
The Fifth Annual UC Irvine Epilepsy Symposium, Manipulating Neural Networks toTreat Refractory Epilepsy.
January 9, 2010
Nurses to Clarify Policy on Anti-Seizure Drug, Orange County Register, Local Section
November 6, 2007
Our executive director, Jennifer Gunther, knows first hand the importance of building support groups that provide education and emotional support for families facing epilepsy. Read her personal story, Group Helps Girl with Epilepsy, Orange County Register, Life Section.