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Three different stories unite a single purpose in our
efforts to help those who struggle with epilepsy:

 

Trisha Balgie-Duringer, Parent

Trish and fellow ESNOC kids have a game of soccer with The Pure Game Soccer during our Summer Celebration - 1st birthday!

  • Child's Name: Trinity, age 2yrs 10 months
  • Diagnosed July 2009 with Lennox Gastau Syndrome & Cerebral Palsy
  • Most Passionate About: God, my daughter, family, and soccer
  • Latest Great Read: The Sookie Stackhouse series (True Blood)
  • Strongest Personality Trait: my faith and determination
  • Favorite Food: anything Italian or Mexican
  • Most Enlightening Moment: when my daughter and I were baptized together
  • Favorite Charities: LGS, ESNOC, Charlie Foundation
  • What would you like to be doing a year from now? I would love to be walking down the beach with my daughter following!
  • Most recent challenge with Epilepsy? The development delays, she doesn't walk or talk; controlling the seizures because medicine doesn't work
  • Greatest triumph over epilepsy? Controlling most of the seizures with the Ketogenic diet
  • I would recommend ESNOC to anyone who has seizures or anyone who takes care of someone with seizures. Everyone needs help and you cannot do it alone!

Tesuk Ihm
Fullbright Scholar, ESNOC volunteer

Tesuk with her daughter Soo, bring passion and energy to the Adult support group meetings and
Epilepsy Walk Orange County.

  • Years as a volunteer: 3 Years, one with the ESNOC
  • Person affected by epilepsy: My daughter was diagnosed with partial seizures
  • Most passionate about: swimming, reading, listening to classical music
  • Latest Great Read or Movie: Waiting for Superman
  • Strongest Personality Trait: hardworking
  • Favorite Food: barbequed Korean beef
  • Most Enlightening Moment: learning the Spanish language
  • Favorite Charities: ESNOC
  • What would you like to be doing a year from now? volunteering
  • Most recent challenge with Epilepsy? Finding the right treatment for my daughter
  • What is your Favorite ESNOC Program? Support group presentations because they provide useful information
  • Words that best describes what ESNOC represents to you? Confident, professional, and supportive.

Mike Beekman
Executive Director of Student Services, Capistrano School District

This year, ESNOC has presented 35 Inservice SR&FA presentations to over 300 school falculty members in the Capistrano school district alone.

 

  • Number of years at current position: 4
  • Previous careers or position: Director, Child Welfare; Assistant principal; Activities director; Teacher School District: Capistrano Unified School District:
  • Most recent challenge concerning children with epilepsy? Diastat protocol in the schools.
  • Greatest triumph concerning children with epilepsy? Better seizure control with additional antiepileptic medications.
  • What was your response to the Seizure Recognition & First Aid presentation? All who attended thought it very helpful.
  • What was the best component of Ms. Moore's, Seizure Recognition & First Aid presentation and why do you think so? Her personal experience with a child with seizures, because she is able to speak from first hand experience.
  • If there was feedback from the attendees, could you please share the best and the worst response? Overall the reviews were excellent.
  • Most Passionate About: Keeping kids healthy and helping them be successful.
  • Latest Great Read or Movie: The Purpose Driven Life – Rick Warren
  • Strongest Personality Trait: Motivation and Perseverance
  • Favorite Food: Real New York Pizza
  • Most Enlightening Moment: The birth of my son.
  • Favorite Charities: Children’s Hospital of Orange County (CHOC), American Leukemia Society, Mariner’s Outreach
  • What would you like to be doing a year from now? The same thing I’m doing now, only better and with more resources.

Braving this Chronic Condition

Please donate today and thank you for taking that final step to say,
“I’m with ESNOC every step of the way!”

Donate

Donate online and thanks for taking that final step to say,

“I’m with ESNOC every step of the way!”

Or donate by check, simply downloading a printable version of this appeal and mailing to ESNOC .

To donate by check:

Payable to "Epilepsy Support Network of OC"

Mail to Epilepsy Support Network of OC
9114 Adams Avenue, #288
Huntington Beach, California 92646

Download a printable return letter


Contact Us:

(714) 916-0456 phone/fax
jgunther@EpilepsySupportNet.org
jmoore@EpilepsySupportNet.org

Mission Statement: The ESNOC is
committed to building a community of
support to improve the lives of those affected
by epilepsy through education, programs
and advocacy.

Core Values: Compassion, Respect,
Integrity, Excellence and Community Benefit.